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Chloe Baxter’s legacy: A journey of resilience and hope in cystic fibrosis research

Exploring the impact of Chloe Baxter's life and the ongoing fight against cystic fibrosis.

Chloe Baxter advocating for cystic fibrosis awareness
Chloe Baxter's inspiring journey in cystic fibrosis research.

Chloe Baxter’s legacy: A journey of resilience and hope in cystic fibrosis research
Chloe Baxter was a vibrant spirit, known for her fierce independence, love for music, and a wicked sense of humor. Born with cystic fibrosis (CF), she faced significant health challenges from a young age.

Despite these obstacles, Chloe lived a life full of laughter and determination, leaving an indelible mark on her family and the medical community.

Chloe’s early life and struggles with cystic fibrosis

Diagnosed with cystic fibrosis at just 18 months old, Chloe was given a mere 75% chance of reaching her sixteenth birthday.

Yet, she approached life with a tenacity that inspired those around her. Chloe pursued her education at the University of Aberdeen, where she studied English Literature, graduating with an upper second-class degree despite numerous hospital stays. Her passion for literature and her dream of independence drove her to work as a care worker for disadvantaged adults, showcasing her commitment to helping others.

The impact of Chloe’s illness on her family

Chloe’s father, Tom Baxter, recalls the family’s journey with CF, emphasizing the normalcy they tried to maintain despite the challenges. “We had a normal family life,” he says, reflecting on their vacations and shared laughter. However, the reality of Chloe’s condition was always present. After securing a new job just weeks before her passing in 2006, Chloe’s life was tragically cut short due to complications from a chest infection. Her death at the age of 23 left a profound void in her family’s life.

Chloe’s Fund: A beacon of hope for cystic fibrosis research

In memory of Chloe, Tom and Grace Baxter established Chloe’s Fund at the University of Aberdeen, aimed at advancing research into cystic fibrosis. The fund focuses on understanding how fungal infections interact with bacterial ones in CF patients, a topic close to Chloe’s struggles. With the help of Chloe’s CF consultant and dedicated nurses, the fund has supported several PhD students and led to significant findings in the field. Tom expresses pride in the ongoing research, stating, “Each time, there have been significant findings. It gives us a lot of pleasure.”

Advancements in cystic fibrosis treatment

Since Chloe’s passing, the landscape of cystic fibrosis treatment has evolved dramatically. New medications like Kaftrio target the genetic causes of CF, significantly improving life expectancy for many patients. Tom acknowledges that Chloe would likely have benefited from these advancements, but he and Grace focus on the positive changes in the lives of current CF patients. “There’s no bitterness,” Tom asserts, emphasizing their support for families who now have access to better treatments.

Chloe’s enduring legacy and message to families

Chloe’s spirit continues to resonate within her family, with her younger sister Gemma naming her child after Chloe. The Baxter family frequently shares stories about Chloe, ensuring her memory lives on. Tom reflects on the lessons learned from Chloe’s life, stating, “You re-evaluate what’s important.” He encourages families currently facing CF challenges to embrace the advancements in treatment and to remain grateful for the progress made in medical science.

As Tom and Grace work alongside the Cystic Fibrosis Trust to raise awareness and funds for Chloe’s Fund, they remain hopeful for the future of cystic fibrosis research. Chloe Baxter’s legacy serves as a reminder of resilience, love, and the importance of continued support for those affected by this condition.


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